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Latest News  -  15 May 2012
THE NEW CHALLENGE

The new challenge has has been launched! www.olliysribquest.com Very exciting times!. . .
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Latest Blog  -  11 December 2011
Wishing David James O'Hare a speedy recovery!!

Last Tuesday my great friend David or 'Dangerous Dave' as i like to call him got taken into hospital due to a second brain haemorrhage. He's been gett. . .
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Hannah's Story

My first encounter of cancer was when I was 15 in 2005, it happened just before Christmas which also happens to be my twin sisters and my birthday. I was diagnosed with a rare tumour in my right eye socket called a fibrous sarcoma. I was shocked and upset and it was hard to believe that I actually had cancer.

me, Amanda and Megan me, Amanda and Megan

I had to learn to deal with this terrifying prospect and to help me do that I met my Clic Sargent nurse, Amanda, who visited regularly to do medical things as well as see how I generally was. She proved to be one of the most important people to me; Amanda helped me feel positive.

Treatment began immediately. Firstly I received two lots of chemotherapy, which made me extremely ill. I was very sick and lost a considerable amount of weight as I couldn't really eat. I felt pretty terrible all the time and of course I lost all my hair too. After the chemo I had a scan to see if the chemo was working, but it was bad news. Unfortunately the chemo wasn't taking effect because the tumour was 'slow growing' or 'low grade' it had to be fought another way.

My next option was an operation would take 7 hours and include a metal plate in my head and a 6 week course of radiotherapy everyday! While all this was going on I was trying to keep up with my school work as much as possible as my GCSE exams were fast approaching. After another scan it was clear that the operation and course of radiotherapy had worked and I was given the all clear in July 2006 it was a huge relief. I managed to get some good grades in my GCSE's too. So the future looked bright and I looked forward to going to Sixth Form College and my hair growing back.

After a routine scan in 2007 I received that fateful phone call... 'we need to see you, there could be a potential problem'. My world was about to fall apart again as my cancer had relapsed in the same place. I thought it would never come back, but out of the woodwork it crawled. I really had the full treatment this time.

It was operation time again, another 7 hour job! They diagnosed the tumour to be the same type as before and roughly in the same place. I had a scar from my right eye brow going down to my nostril.

Me at my 18th Birthday party Me at my 18th Birthday party

The tumour was removed successfully and I began the recovery process this time in an adult ward. I missed all my A level exams including a photography exam which was my passion, my college were amazing though and marked me on the work I had already done, again I received some great results.

I started to look towards the future and going to university. But my dream of going to university and coincidently studying radiography was about to be delayed for a year but in the end, I didn't know it at the time, but I never did go to university.

In March of 2008 I noticed a small lump in the corner of my right eye. I had a routine scan, like normal, and again it was cancer. 'As if I hadn't had enough of it already'. My chemotherapy started in June. This time it was really hard to go back into hospital every time I was very ill, not eating, continually tired and missed my friends and having 'normal' life.

I lost all my hair for a second time after spending so long growing it back. I was told that these tumours were different they were faster growing which meant they reacted to the chemo better. I spent a lot of time in hospital and continually had infections which meant I had to be readmitted. One time I had a severe allergic reaction and was in a semi-coma for a couple of days or my 'funny turn' as I like to call it. I finally finished the course, but was to start having treatment called maintanence chemotherapy. I had this once a week at hospital, it took about 20 minutes and the aim was to control the tumours rather than get rid of them. The chemo had done as much as possible.

I used to drive myself or my mum or sister would take me. I felt that we were getting somewhere with it and we all believed that it was taking an effect. I also began another course of radiotherapy this time on a special machine called tomothearpy which would attack the tumours in slices. The radiotherapy made me extremely tired and I was finding hard to get out and about. I was ever aware of the way I looked, the tumours had always been on my face and I worried about people staring, which they did, and tried to hide my eye behind my wig.

In May 2009 I went to hospital for a regular check up with my doctor it was then that my world was turned upside down. I was told that the months of radiotherapy and maintenance chemo had had no effect on the tumours and that they were growing more furiously then ever, it had gone 'terminal'.

They had looked into all sorts of treatments but nothing was suitable. I was told I only had a year to live.

After the initial devastating news my old feeling to 'just get on with it' kicked in. So I began to plan what I wanted to do so I could have an amazing year with my family and friends. I booked a holiday to Disneyland Paris and had an amazing week going on rides I never would of before and spending a fortune in the gift shop. I had a week in Derbyshire and my family organised a surprise BBQ.


Another thing which I will never forget was meeting Rolf Harris, it was such an exciting day he drew pictures for me and my twin sister and we had tea and cakes.

I really started to struggle to cope with the headaches, due to the steroids and other drugs I was on meant I lost all muscle in my legs and upper arms. So I went round in a wheelchair but after a while I struggled to use my legs at all. I stopped going to hospital, so much as they didn't want me to be there and to be enjoying myself instead. So a doctor from my local practice would visit everyday and deal with my prescriptions.

Clic Sargent are amazing! Anita, from Clic Sargent would visit regularly, we would chat about nothing and drink tea and eat chocolate biscuits.

I first met Olly at the Teenage Cancer Trust conference at Sherwood Forest Nottingham, it was the second time I had been and we have been great friends ever since. Olly, myself and other young cancer suffers would all get together on days organised by Clic Sargent, we went to events like 'go' carting and bowling.

We all had a great night when jimmy teens organised a mini Oscars night, there was a red carpet and everyone had a good time.


Olly really has been and is such a good friend he would always come and visit me in his various assortment of really random cars, and makes me laugh. I am so proud that he is putting all his time and effort into raising money for three amazing charities. Olly's sailing challenge will make all people in my situation hopefully a bit more comfortable and a bit happier. It's a real inspiration for me and I can't wait to see his boat being launched in May next year!



Shortly after Hannah wrote her story, within a matter of days she lost her sight in both eyes due to the growing tumours. Though this time she was very scared, but remained her normal self, happy and positive.

Hannah passed away on 23rd October 2009, she battled with cancer for 3 years. The story was written by Hannah just before she died. She never reached her 20th birthday which we both would have shared on Christmas day.

Megan
Hannah's twin sister




Hannah was one of my closest friends, if it wasn't for our illness we would have never met. She was a fantastic person to talk to and we have some great times together. Hannah said to me "I'm going to stay alive long enough to see the boat finished, and if I can't see it then I'm sure as hell going to be on it!"
She was such a focused, brave and courageous person... a great inspiration for me to complete my challenge.

Olly